this post was submitted on 23 Apr 2025
63 points (100.0% liked)

/r/50501 Mirror

910 readers
1384 users here now


Mirrored /r/50501 Popular Posts


founded 2 months ago
MODERATORS
 

I am a mother and sister to individuals with Autism. RFK is using NIH to collect data. I am so scared and I don’t know where to start. I need guidance. Please. Thank you to everyone here.

https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/


Originally Posted By u/enzerukristin At 2025-04-22 05:39:37 PM | Source


top 2 comments
sorted by: hot top controversial new old
[–] Kit@lemmy.blahaj.zone 4 points 6 days ago

Medication records from pharmacy chains, lab testing and genomics data from patients treated by the Department of Veterans Affairs and Indian Health Service, claims from private insurers and data from smartwatches and fitness trackers will all be linked together.

This is a privacy nightmare.

[–] warmaster@lemmy.world 3 points 6 days ago

I don't know. I haven't faced a similar situation.

But considering the law doesn't mean anything to this increasingly totalitarian regime, if my kids' lives were at risk, I would analyze this scenario:

Moving to the closest country that speaks my language, has school grade equivalencies, and a similar culture so that the whole ordeal is less traumatic for my family.

I would rent my house and try to store the properties that we wouldn't want to take with us in a safe place, and sell the ones my family won't need.

I would seek remote work opportunities in my country so that returning home (when safe) results in an easy enough transition.

This reality won't change for the better until those in power get replaced by candidates that value democracy, the law and human rights and put in place safeguards so that this can't happen again.