SOB_Van_Owen

joined 2 years ago
[–] SOB_Van_Owen@lemm.ee 3 points 2 weeks ago (1 children)

Chronic Inflammatory Demyelinating Polyneuropathy.

Agreed.

[–] SOB_Van_Owen@lemm.ee 7 points 2 weeks ago (4 children)

Yes! Lots of folks with chronic illness find themselves in a limbo where they can't get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can't even hope for. I know this because I've been there. CIDP here since 2010.

[–] SOB_Van_Owen@lemm.ee 4 points 1 month ago

Seem to recall Blood Music had a pretty ok outcome. Though maybe it was overly optimistic.