this post was submitted on 26 Nov 2025
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The drug I have to take to live costs anywhere from $4,000-$5,500/month without insurance. This is actually cheaper than what I was on before—a cocktail of 4 drugs, some taken multiple times a day, that was almost $10,000/month. I’m lucky(?) that there are a ton of programs that together cover the cost for me. Unfortunately there are hoops I have to jump through every month to continue qualifying for the assistance and have to regularly take time off from work to make the appointments. I’ve lost jobs due to this, but am currently working a position where my manager is happy enough with my work to fudge time cards to help me out.
I hate this country.
oh, it gets better. Baby born with Spinal and Muscle Atrophy? There is a cure! $2,500,000!
They hold lotteries for doses, a few babies win, most babies die.