Yeah you should definitely avoid running. At a guess, maybe in-pool exercises would be less uncomfortable? Keep you cooler and balance out the skin sensations? But with fatigue issues you'll want to stay shallow enough to stand unless you're a good floater, and have someone near the pool just in case.

Or is exercising something you should even be doing? Maybe you have a doctor's excuse!

[–] Crankenstein@lemmy.world 3 points 18 hours ago* (last edited 18 hours ago)

Doctor has advised "low impact" exercises such as swimming and cycling as alternatives

Those would be good alternatives if I had access to them. No pool anywhere nearby and no infrastructure to cycle safely. Rural area is aggressively anti-cyclist. Like "people will run you off the road into the ditch for laughs" aggressively anti-cyclist. Too poor to afford stationary equipment, much less a home with a yard to put a pool.

Even still, I'm fighting a losing battle. My body will atrophy no matter what I do. All any exercises will accomplish is slowing the degradation. Already have partial loss of use in my hands, haven't been able to play my guitar in over a decade now, and only a matter of time before I can no longer use my legs.